Hi everyone!
The last few weeks have been slowly getting a little better to manage. The side effects are still the same although I am beginning to see new side effects! My skin is starting to peel, and my eyes are starting to hurt. I’ve been told that after the eye pain comes the eye bleeds. This is a normal side effect as the blood vessels pop from the chemo….
When I look at the big picture I feel very thankful I am in the situation I am in! It could be much worse! This Thanksgiving is a special one for me!
Thank you to everyone who has been purchasing the bracelets! I am also in the process of setting up a foundation for cancer research. I am currently looking for people that want to join me and be on my board. My foundation is going to be focused on the social similarities of CML patients.
More to come!
Happy Thanksgiving!
Love,
Ryan
Tuesday, November 24, 2009
Tuesday, November 17, 2009
We Support Ryan Bracelets
Hi Everyone!!! Bracelets have finally come, so if you want one click on the box below and fill out your info and I'll get them out to ya! If you want several there is a link on the side bar with the drop down menu to get several if need be. Thanks for your support!!!
** Click on pic to enlarge***They glow in the dark too!
** Click on pic to enlarge***They glow in the dark too!Monday, November 16, 2009
Update on Chemo
Hi everyone!
I wanted to give everyone an update on how things are going. This past week has been about the same in terms of side effects. I think my body is starting to get used to the chemo. I've found it pretty easy to control having nausea. The pain is also pretty manageable. I am gaining weight because one of the side effects is retaining water. My skin is also pealing which I think is another side effect!
My friends and I at CML2 are going to plan a get together soon so we can all meet each other. That should be a good time!
I'm also keeping myself pretty busy. As most of you may know I love music! I also mix music. This weekend I finally bought my Mac so I can start making music! Its been a lot of fun!
As a side note please remember that at night I do not answer my phone unless you leave a message and its an emergency. I take my chemo at night and it makes me feel very crummy.
Also, the wristbands have come in and they are on the way to Jenifer. I also have about 100 that I will have on me. If you live in CA and want one I can ship them off to you. They are 5.00 each and 100% of the money will go to the Leukemia and Lymphoma Society for Cancer research.
Thanks everyone! Love you!
Ryan
I wanted to give everyone an update on how things are going. This past week has been about the same in terms of side effects. I think my body is starting to get used to the chemo. I've found it pretty easy to control having nausea. The pain is also pretty manageable. I am gaining weight because one of the side effects is retaining water. My skin is also pealing which I think is another side effect!
My friends and I at CML2 are going to plan a get together soon so we can all meet each other. That should be a good time!
I'm also keeping myself pretty busy. As most of you may know I love music! I also mix music. This weekend I finally bought my Mac so I can start making music! Its been a lot of fun!
As a side note please remember that at night I do not answer my phone unless you leave a message and its an emergency. I take my chemo at night and it makes me feel very crummy.
Also, the wristbands have come in and they are on the way to Jenifer. I also have about 100 that I will have on me. If you live in CA and want one I can ship them off to you. They are 5.00 each and 100% of the money will go to the Leukemia and Lymphoma Society for Cancer research.
Thanks everyone! Love you!
Ryan
Monday, November 9, 2009
Rough week! Feel a little better now…
Hi everyone!
Man last week was a rough one.... As you all know I have been taking my new chemo Gleevec 400 mg once a day now for a week. Well after day three it caught up with me! I can deal for the most part with nauseous but not with pain! On Monday my whole body began to ache like I had arthritis or something. Then it moved into my bones as a deep throbbing pain. Tuesday - Thursday was by far the worst. The pain intensified and along came fevers, and chills.
Finally on Friday I went back to the doctor and asked what was wrong with me. She looked at me and said "Ryan, you have cancer." The pain you are feeling is the cancer trying to leave. Man was it ever!
My doctor dropped my dose to 200 mg per day to help with the side effects. Now at least Tylenol and Motrin will touch the pain!
I feel much better today. Thank you all for your thoughts and prayers! Things will get better! They can’t get much worse after last week!
Love, Ryan
Man last week was a rough one.... As you all know I have been taking my new chemo Gleevec 400 mg once a day now for a week. Well after day three it caught up with me! I can deal for the most part with nauseous but not with pain! On Monday my whole body began to ache like I had arthritis or something. Then it moved into my bones as a deep throbbing pain. Tuesday - Thursday was by far the worst. The pain intensified and along came fevers, and chills.
Finally on Friday I went back to the doctor and asked what was wrong with me. She looked at me and said "Ryan, you have cancer." The pain you are feeling is the cancer trying to leave. Man was it ever!
My doctor dropped my dose to 200 mg per day to help with the side effects. Now at least Tylenol and Motrin will touch the pain!
I feel much better today. Thank you all for your thoughts and prayers! Things will get better! They can’t get much worse after last week!
Love, Ryan
Thursday, November 5, 2009
You know life is funny....
Hi everyone,
The chemo is taking it's toll on me. I'm sorry if I am not very social but I have been struggling for the past several days. I hate to complain as I feel very blessed that I am alive.
That said, I just found out that my cousin was just diagnosed with ALL. This is very sad news. I am posting the link to his site below. Please take a look when you have some free time.
www.carsonwiener.com
Love,
Ryan
"Chemo-Sabi"
The chemo is taking it's toll on me. I'm sorry if I am not very social but I have been struggling for the past several days. I hate to complain as I feel very blessed that I am alive.
That said, I just found out that my cousin was just diagnosed with ALL. This is very sad news. I am posting the link to his site below. Please take a look when you have some free time.
www.carsonwiener.com
Love,
Ryan
"Chemo-Sabi"
Tuesday, November 3, 2009
For Allison....
For my friends at CML2. Allison has created a very powerful website that I hope you will visit to see her father’s story. Here website is www.cancercloud.org
Keep fighting!
Chemo-Sabi
Keep fighting!
Chemo-Sabi
Doctors Update!
Hi everyone!!!
Good news! the new chemo is working! After just three days my WBC has dropped in half! It went from 68,000 to 38,000. My doctors are closely monitoring my levels as they are now concerned about my blood counts getting too low.
My next appointment is on 11/16.
You know people always ask me "are you doing ok, how's the treatment going, man I'm so sorry this happened to you, etc...."
This whole experience has taught me a lot. Most of all- it has humbled me in more ways than I can express on this blog. It really puts life into perspective. Each time I walk in to see my team of doctors at the cancer center I see so many cancer survivors that have heart stints with tubes sticking out pumping chemo through their hearts.... I feel blessed. I am so thankful that I am dealing with a cancer that is treatable by outpatient chemo. I'm thankful to all of my friends and family that have been here for me. My team at work, my friends at CML2- EVERYONE! Thank you from the bottom of my heart!
As I was sitting in the waiting room yesterday when I ran into my good friend Mike. He was my neighbor when I was in the hospital who came by to say hi and comfort me when he heard the news that I have the same cancer as he does. We talked about our side effects from chemo and what we want to do when this crap is done.... Friends like him are what makes this fight so important!
Thank you again for all of your prayers!
Love you all!
Ryan
Good news! the new chemo is working! After just three days my WBC has dropped in half! It went from 68,000 to 38,000. My doctors are closely monitoring my levels as they are now concerned about my blood counts getting too low.
My next appointment is on 11/16.
You know people always ask me "are you doing ok, how's the treatment going, man I'm so sorry this happened to you, etc...."
This whole experience has taught me a lot. Most of all- it has humbled me in more ways than I can express on this blog. It really puts life into perspective. Each time I walk in to see my team of doctors at the cancer center I see so many cancer survivors that have heart stints with tubes sticking out pumping chemo through their hearts.... I feel blessed. I am so thankful that I am dealing with a cancer that is treatable by outpatient chemo. I'm thankful to all of my friends and family that have been here for me. My team at work, my friends at CML2- EVERYONE! Thank you from the bottom of my heart!
As I was sitting in the waiting room yesterday when I ran into my good friend Mike. He was my neighbor when I was in the hospital who came by to say hi and comfort me when he heard the news that I have the same cancer as he does. We talked about our side effects from chemo and what we want to do when this crap is done.... Friends like him are what makes this fight so important!
Thank you again for all of your prayers!
Love you all!
Ryan
Monday, November 2, 2009
It's Not So Bad!
Hi everyone!
Thank you for all of your continued love and prayers. I thought I would update everyone as I was not up to talking much over the weekend.
I have to tell you.... either I prepared myself really well, or this Gleevec is candy corn (hehe just kidding!) My friends at CML2 call it our gold!.
The side effects are totally manageable. I feel very blessed to have cancer that is managed by chemo in pill form!
Ok, I need to take my Ritalin I can’t focus right now... another side effect of Gleevec!
Oh yeah I now have short term memory loss... another side effect.
Thanks everyone!
Love you all!
Thank you for all of your continued love and prayers. I thought I would update everyone as I was not up to talking much over the weekend.
I have to tell you.... either I prepared myself really well, or this Gleevec is candy corn (hehe just kidding!) My friends at CML2 call it our gold!.
The side effects are totally manageable. I feel very blessed to have cancer that is managed by chemo in pill form!
Ok, I need to take my Ritalin I can’t focus right now... another side effect of Gleevec!
Oh yeah I now have short term memory loss... another side effect.
Thanks everyone!
Love you all!
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